Ok so remember self DNA testing company 23andme? That company founded in 2006 to provide individual consumers with genetic testing kits and interpretation? Nope? That company founded by then Sergey Brin's wife Anne Wojcicki and her friends? Also don't remember that in 2007 Google invested almost 4 millions in the company either?
Three days ago the company announced a new partnership with the pharmaceutical company GlaxoSmithKline. The company, which has invested 300 million dollars in 23andme, will be able to use tests results of over 5 million customers to design new drugs. \o/
Just in case GSK is not familiar to you : the pharmaceutical company has been convicted of hiding negative experimental outcomes and using mafia like strategies to encourage excessive prescription of one of the most addictive SSRI's on the market (cf the World Health Organisation report) to under 18s without authorities approval nor probant clinical results (https://en.wikipedia.org/wiki/GlaxoSmithKline#Paroxetine_(Paxil/Seroxat) )
Indeed. I could go on a never ending rant on the pharmaceutical market sector but the main question here, as you're pointing out, is who should be allowed to create, administer, lock down (or not) and use such databases... (and the direct consequences of leaving that power in the hands of venture capital funded start ups). 😟